The Global Registry of Alopecia areata disease Severity and treatment Safety or GRASS – Pilot Phase 

GRASS is an organisation which runs a disease registry study that records, stores and analyses relevant data about the health and medical treatment of people living with Alopecia Areata (AA). It is a member of a developing global network of connected AA patient registries called GRASS-International. This group formed after an extensive international project that included patient organisations, expert physicians, scientists and regulatory and industry representatives. The registry is currently in pilot stage and under development before full release.

A pilot of GRASS was launched internationally in 2022. You may be invited to take part in this AA Registry because you have AA.  Before you decide whether to take part, it is important that you understand why the registry has been setup and what it will involve.

Some examples of how your data may be used in an international AA registry:

How do I register?

If you do decide to take part, you can find out more in multiple ways: