Our role is to collect and protect
skin registries and their communities
Our objectives:
Information Networking
Building connections between clinical data, collaborative partners, patient organisations and our registries
Knowledge
& Insight
Provide consultation on the development and governance of dermatology registries
Improving Research
Collecting the data of consenting patients to generate anonymised data points for research to improve their lives
Data
Analyses
Statistical analyses of anonymised registry data and support with data interpretation and publication
Protecting Data
Standardized oversight of registries and stewardship of data to GDPR data protection standards