Our role is to collect and protect
skin registries and their communities

Our objectives:

Information Networking

Building connections between clinical data, collaborative partners, patient organisations and our registries

& Insight

Provide consultation on the development and governance of dermatology registries

Improving Research

Collecting the data of consenting patients to generate anonymised data points for research to improve their lives


Statistical analyses of anonymised registry data and support with data interpretation and publication

Protecting Data

Standardized oversight of registries and stewardship of data to GDPR data protection standards

6 Registries

3,000+ Consented Participants 

11 Research Papers in 4 Years

8 Clinical Centers