In 2023 CFRI and HRCI jointly hosted a very productive event entitled The Future of Patient Registries in Ireland’. Rather than producing a simple event report, they decided to create a more useful output. Through drawing on the discussions held during the event, building on a previous version published in 2018 by HRCI, and enlisting the additional expertise of National and International Skin Registries, they have created this guidance document which can be downloaded here!