Who We Are
The Global Registry of Alopecia Areata Disease Severity and Treatment Safety (GRASS) is an international initiative dedicated to bridging the gap in real-world data for Alopecia Areata (AA).
AA is an autoimmune condition characterized by unpredictable hair loss that often carries a profound impact on a patient’s quality of life. To meet this challenge, GRASS operates as a collaborative global network:
GRASS International: Governed by The Australasian Hair and Wool Research Society, Melbourne, Australia, providing global oversight and strategic direction.
GRASS Europe: Governed by NISR Solutions CLG, Dublin Ireland this branch currently coordinates clinical sites according to GDPR across Ireland, Italy, Spain, and Germany.
By unifying expertise from around the globe, we are building a comprehensive evidence base to better understand and treat this complex condition.
What We Do and Why
In a rapidly shifting treatment landscape, harmonized data is the key to progress. GRASS was born from a multi-stakeholder international consensus exercise aimed at creating a standardized, high-quality dataset specifically for AA.
By building on proven frameworks—such as those used by international atopic dermatitis registries—we work to reduce data fragmentation and maximize the potential for breakthrough insights.
Our Core Objectives:
Harmonize Global Data: We eliminate data heterogeneity across borders, allowing for direct comparison of clinical outcomes and treatment safety.
Set New Standards: By measuring and comparing epidemiological and clinical aspects of AA, we identify and promote international best practices for patient management.
Fuel Research: We provide a robust data foundation for epidemiological research and help identify patient cohorts eligible for multi-centre clinical trials.
Inform Practice: Our real-world data helps clinicians and researchers understand how evolving treatments impact disease outcomes in everyday practice.
Promote Collegiality and Collaboration: We create networks of committed stakeholders, to promote sustainable, cooperative research and knowledge sharing across borders.
Optimise resources: By harmonising and sharing resources and broad skillsets, we reduce the cost of research
Prioritisation of privacy and security: Through central investment, and incorporation of diverse perspectives, we ensure optimum standards.
How to Get Involved
The strength of GRASS lies in its network. We are actively seeking expressions of interest from dermatology departments eager to contribute to this growing global repository.
By joining GRASS Europe as a participating site, your department will be at the forefront of AA research, helping to shape the future of treatment and improve life for patients worldwide.
To learn more about the onboarding process or to register your interest, please contact our co-ordinating centre:
Email: grass.eu@nisrsolutions.com
“Extending work from international atopic dermatitis networks, GRASS aims to ensure that no matter where a patient is treated, the data collected contributes to a global solution.”